Tag: featured

Clearing Up Some Misconceptions About Corn Allergy

When you google “corn allergy”, the top links you get back seem to convey a picture of corn avoidance that is far less complicated than what I experience, and what the folks in my support groups and who contact me directly through my blog experience. Now, I’m not trying to bum anybody out here, but I am trying to keep everybody safe. Which does seem to bum people out a lot. But hey, I like being alive so I’m not bummed at all to know things that keep me that way.

Here are some of the things I see a lot of the most popular google hits on corn allergy get wrong. I’ve included references where I can, but in a lot of cases research on these kinds of things just haven’t been funded. So for some items all I really have is my own experiences, my own critical thinking, and reports from the patient community to go on. I would much prefer solid statistics and rigorous studies. If you would like to explore some of these topics in that manner, let me know and I will help you find volunteers to participate.

In the meantime, this is what I know, based on as much peer-reviewed research as I can find, the reports of 8,000 members in a support group, and many dozens of direct messages between myself and members of the corn allergy community:

Misconceptions about Corn Allergies
  1. Corn allergy reactions are only to the protein.
  2. If you have to avoid derivatives and traces of corn, you can do so by reading labels.
  3. If you have to avoid derivatives and traces of corn, you can do so by calling or emailing manufacturers and asking them if their product “contains corn”.
  4. Airborne reactivity to corn is impossible or at least incredibly rare.
  5. Coping with a corn allergy only involves avoiding foods that contain corn.
  6. The symptoms of a food allergy are limited to hives, hay-fever type symptoms, severe facial swelling, or throat closing.
  7. Food intolerances cannot cause serious reactions.

Incorrect: Corn allergy reactions are only to the protein. Starches, sugars, alcohols or other items synthesized using corn products as a starting material cannot cause an allergic reaction.

Actually:

Allergens can be more than just proteins.

Continue reading “Clearing Up Some Misconceptions About Corn Allergy”

The Water Post

Help! I’m Reacting to Water???!

This is a message I’ve gotten a few times, and I haven’t had a very complete response to it to date because I haven’t been able to solve the problem for myself. And now that I have it mostly solved, I still don’t have any clear explanation for the phenomenon or any guaranteed solutions for anyone. Just some suggestions.  But here is literally everything I know about and have tried re: finding safe water to drink when you have corn allergy, chemical sensitivity, or a mast cell disorder.

I am making many claims below that need elaboration or references. I will come back and add details and links as I have time, but I thought it was important to just do a brain dewump ASAP because there are people who need this info that currently don’t have safe water.

tl;dr – The Short Version

If you are allergic to corn and are reacting to your water,  DO NOT DRINK Dasani or Aquafina. These are KNOWN to contain corn derivatives in the form of “added minerals” and/or the bottles are made from corn plastic.

It’s up in the air as to what people tolerate the most for water. Crystal Geyser used to be the goto, but they changed their plastic to be 50% PET and many people began reacting. Others can still tolerate it. I would just begin trialing bottled water from any of the following brands: Crystal Geyser, Fiji, Starbucks Ethos brand, Mountain Valley Spring in glass bottles, Starkey,  Voss in glass bottles, Poland Springs. Also join the Facebook Corn Allergy and Intolerance group, because you are going to need some real-time group support getting this figured out.

Update 2020: I have not tolerated any of the dozens of brands of bottled water I tried over the last 8 years. But I recently tried Starkey Water, made by Whole Foods, and tolerated it! Please note that if you google Starkey, the first thing you will see is a Consumer Reports study stating that it contains high levels of arsenic, as does Crystal Geyser. There are other articles explaining that this isn’t a big deal, but I’ll let you do your own research on how worried to be about that. I would suggest that if you are concerned, filtering your bottled water would be an option.

Where’s the Corn  (or other allergens) in Water?

Quite honestly, I do not know why precisely water is such a problem for corn allergy folks.  It definitely is but I really can’t provide a lot of clear physiological explanation for why that would be. It is true that some corn derivatives may be used in water treatment, and that mineral fortification treatments may have corn-based excipients in them. However the degree to which we see water issues really outpaces what could be explained by that,  in my observation.
I think it is likely an issue with multiple sensitivities and the intersection of mast cell activation disorders that causes the issue. And the result of that is that there is no universally tolerated water, and there are several folks  within my online social circles at any given point in time who are not completely tolerating *any* water.
Here are the things that I have observed can be problems for myself and others with corn allergy and/or mast cell activation disorders:

Bottles: Glass Sanitizers

Antimicrobials seem to be a huge trigger for corn allergy folks as well as MCAD folks. No-rinse bottle sanitizer products can contain corn derivatives and even corn starch when they are the drop-in tablet form.

Bottles: Glass Mold Release/Coatings

Continue reading “The Water Post”

Corn Free Travel (Reprise)

[Updated 1/2018.]

It’s getting to be my travel season again, and while I haven’t solved most of my problems, I’m at least getting better at working around them.

My first travel post was in 2013 and was my first major trip since developing an intense sensitivity to corn, multiple food allergies, and becoming airborne sensitive:

Corn Free Travel: To Baltimore and Back Again

Since then I have traveled to:

  • Austin, Texas for the Housecore Horror Film Festival (yes, as in movies! But they didn’t serve popcorn so I could actually go!)
  • Oakland and San Francisco, CA (twice!)
  • Baltimore 3 more times for Maryland Deathfest
  •  NYC twice, for Martyrdoom, and also to hug friends.
  • Bend, Oregon for a specialist doctor.  (This got me my EDS diagnosis)
  • Minneapolis, Minnesota, for another specialist doctor.  (This got my my MCAS diagnosis.)

After a few trips like this, I am somewhat of an old hand at traveling. It doesn’t really get less awkward, but I just am more resigned to it. I refuse to quit living my life and doing things I enjoy just because my body is a jerk, so I am going to keep going through this effort and expense.

The topics covered in my previous post are still germane, and I still have a water problem that is not corn. I haven’t solved this water problem. I am still shipping my water ahead. Here’s a rundown of my travel “routine”:

Continue reading “Corn Free Travel (Reprise)”

Ask Corn Allergy Girl: Finding a Compounding Pharmacy

The Question

Hello,

I recently developed an allergy to ALL of my prescription medications. I take several of them and they are medications that I desperately need. Everytime I take them I have itching. I researched all of the ingredients and found that they all contain the same fillers & inactive ingredients. The common ingredient is magnesium stearate, but I’m not sure if it is the specific culprit. There are so many. I am having trouble finding substitutes that do not have all of the same exact fillers or any fillers for that matter! This is so frustrating! I don’t know what to do. Even OTC meds have all the same crap. I have prescriptions that need to be filled right now, but I am afraid to. My pharmacist thinks I’m crazy and we got into an argument over it. I live in a rural area where there aren’t any compounding pharmacies. Do you know of a reputable national compounding pharmacy that uses pure medication without fillers? I am going to an allergist next week. I hope she believes me & is will to try a REPUTABLE compounding pharmacy that uses pure medication without using crushed pills. Please I would appreciate any suggestions.

Thank you!
Sheri

Some Background: There’s Corn In Medications?

If you look at the inactive ingredients of just about any prescription medication, chances are you will find at *least* one item from the corn allergens list, very likely corn starch. What to do then? Sometimes you may be able to find a version of the medication that is either corn free or has little enough corn that you can tolerate it. If not, you may need to have some of your meds custom-made for you with ingredients you tolerate. There are pharmacies called compounding pharmacies that can do this for you.

My Response to the Question

I have been exactly here and it’s scary and frustrating.

First, are you on the Facebook Corn Allergy group and/or the Delphi Avoiding Corn Forums? If not, join one or both of them immediately. You need some support, and there may even be a member of one of those groups who is in your state and already has a pharmacy they are working with.

There are a couple of reputable national compounding pharmacies. College Pharmacy is one. However the “big guys” that can ship to every single state rarely use custom filler, and I find it highly likely that you will need to provide your pharmacy with a custom filler you know you tolerate. If not now, you probably will later. So rather than go for a national compounding pharmacy, it would be better if you can find someone more local to you via the Pharmacy Compounding Accreditation Board. (Choose “PCAB Compounding Pharmacy” from the dropdown if in the USA, or “Canadian PCAB Certificiaton” if in Canada.)

If I were you, I would use that registry to find someone near you, either in your state or in a neighboring state, and ask them:

1) Do they make their custom prescriptions out of the pure drug, without fillers, and mix in their own fillers on site if fillers are needed? (Some “compounding” pharmacies get the drug already diluted with corny fillers, and this will not work for us.)
2) If fillers are required, are they able to use a filler that YOU provide, if you are unable to tolerate any of the fillers they stock?
3) If you do not tolerate the soap they use to clean the capsule machine (many use Dawn which is corny), would they be able to use a different soap for you?
4) If you do not tolerate the gloves they use to handle the meds, are they able to switch to a different type?

The answers to all of the above should be yes in order for you to do business with a pharmacy. Even when they answer all your questions correctly, be prepared that the first time you fill a script, it may not be successful, so don’t go ordering a 90-day supply to begin with.

Note that I personally do not need to have them use a custom soap on their capsule machines, however my pharmacy is willing to do so if needed and that is comforting to me. At the time of writing I have them use Karlin’s Finest Baking Soda for a filler and Letco brand gelatin capsules. They don’t use custom soap on their capsule machines but they do refrain from stuffing their bottles with cotton and I have asked them to not use packing peanuts when mailing my prescriptions.

Getting Medications Compounded on News for Corn Avoiders

My Additional Notes on Getting Medications Compounded

Don’t Panic: A Beginners’ Guide to Corn Allergy

So you’re allergic to corn.

First: Are you SURE you are allergic to corn? People often forge ahead with this as an assumption and in some cases, it might be best to question it, at least for a minute. As you will realize as you read the rest of this post, avoiding corn is not as simple as cutting a few foods from your diet. Corn is not only a food, it is a food additive, preservative, disinfectant, lubricant, emulsifier, anti-caking agent, and more. Not everyone has to avoid everything derived from corn, but for some reason more people have to avoid more derivatives than you’d ever expect.

If you’ve had an adverse reaction to a food, you should definitely avoid that food in the future. But if the food had many ingredients besides corn, it might be worth taking some time to think critically about whether the corn in the food was the problem or something else.

So before you start turning your life upside down: What gave you your diagnosis? Was it a scratch test? Those have false positives. Was it a blood test? Those don’t usually have false positives, but it could happen. Did you do a food challenge? What was the food you challenged? Any chance it was a possible allergen contaminant in the food other than corn?

Okay, so you’re SURE it’s corn that you’re allergic to. Now what?

The steps for dealing with a corn allergy are about the same no matter how severe your reactions are. But if you are having severe reactions, you need to follow sort of an accelerated schedule and get yourself out of crisis ASAP.

Symptoms of severe reactions include:

  • tight, hoarse, trouble breathing/
    swallowing
  • shortness of breath, wheezing, repetitive
    cough
  • Significant swelling of the tongue, lips
  • becoming pale, blue, faint, having a weak pulse, being dizzy
  • rash/hives over more than 25% of the body
  • widespread redness/flushing
  • loss of consciousness (including feelings of excessive sleepiness that you just can’t fight- getting to lay down before you pass out still counts as passing out!)
  • loss of motor coordination
  • extreme swelling of the eyes, lips, or anywhere else in the body
  • prolonged and or painful diarrhea/intestinal cramping
  • prolonged vomiting
  •  Feeling something bad is about to
    happen, anxiety, confusion

Read more about the signs of anaphylaxis here on the Food Allergy and Anaphylaxis Network.  In particular, please take a look at, and carry with you, this simple handout on how to recognize and treat anaphylaxis. Here is another overview of the effects of anaphylaxis on the body. If you are having these kinds of reactions, you need to make drastic changes right NOW, get as corn free as possible to begin. Then maybe you can see how much you can tolerate adding in from the “corn lite” options. People with less severe reactions can sort of take their time instead of diving in head first.

Who This Guide Is For

This guide is written for people who are reacting a lot or reacting severely, because that’s the situation I came from, but I think it can contain good advice for others.

Even if you aren’t currently in crisis, I don’t suggest that you start out by assuming that you aren’t very sensitive and don’t need to make many changes. Rather, I strongly suggest you aim for going completely corn free within 6 months, and *then* see how well you do with derivatives and traces. The reason I suggest this is that there are a number of symptoms people wouldn’t typically associate with an allergy or intolerance such as joint pain, mild GI distress, acid reflux, “random” mild rashes or itching, eye pain, fatigue, bouts of sleepiness, blood sugar highs and lows, and eczema, that can disappear with the elimination of corn, but that you wouldn’t realize are a reaction until you eliminate the offending food for a while and then reintroduce. All of these symptoms are indications of inflammation that are doing long term damage to your body, so it is in your best interest to eliminate those sources of inflammation so that you can heal.

Learn the Basics

The following article is a really good overview on the spectrum of allergies and sensitivities. Please read it right away to give yourself a good grounding in the basics before beginning your corn free journey: Inflammation – Allergies and Sensitivities on WomenToWomen.

Get Support

Find a community of people who have already done this. I suggest the Corn Allergy and Intolerance group on Facebook because it saved my life literally in 2012, but it’s also grown quite a lot since I joined, and more members means more posts from other new people.  I strongly believe that communicating with other patients can help you learn more about your own situation- there is no way I would have made the progress I have with either my food sensitivities or my other conditions without learning from others what did and didn’t work for them.  But keep in mind: no matter where you get support, that there is no shortcut for studying, learning, and using your best judgement.  If someone tells you that something is corn free, and it sounds to good to be true, probably err on the side of caution.

Stay Safe

  1. Figure out how to safely treat reactions.
  2. If you have the kind of severe reactions listed above, get a prescription for an EpiPen. If you have reactions that aren’t necessarily severe but are definitely a “true allergy” meaning hives, rashes, asthma, and other IgE symptoms, you may want to consider getting an EpiPen just in case. A bit more on “true allergies” vs intolerances. If your usual doctor won’t give you one, try the walk-in clinic. If they won’t give you one, skip directly to the “Get Your Doctor On Board” step and find someone who will write you a prescription. Learn when to use your epipen. The EpiPen 2-pak comes with a “training” pen and instructions on how to use. Read up on it before you need them and train at least one family member on how to use it as well.
  3. Read this emergency medicine info. Bookmark the mobile site and use the information to prepare your own ER docs.
  4. Don’t assume that if you do not have a true “allergy”, you cannot have a severe or life threatening situation as a result of your corn sensitivity: there have been some rare incidences of IgG, the immunoglobulin that causes “food intolerances”, causing anaphylaxis:  https://www.ncbi.nlm.nih.gov/pubmed/21029722/
  5. It is possible for food to do lasting or even immediately life-threatening harm without allergies being involved.  The following are not corn, but illustrate some ways that food can harm you other than allergy:
    1. Sulfite sensitivity is not mediated by IgE but can be deadly.
    2. Celiac disease is an autoimmune response to food and can do lifelong irreparable damage to your body.
    3. G6PD deficiency causes red blood cells to be destroyed in the presence of certain food or meds. This can be deadly and in some extreme cases people have died from airborne exposure to a trigger before they could be given blood transfusions.

Continue reading “Don’t Panic: A Beginners’ Guide to Corn Allergy”

Safe-for-Me Products: The List of What I Use

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Last updated March 2023

Sensitivities vary so wildly and there is no such thing as a list of foods that will work for everyone with a corn allergy. PLEASE try any product with caution, no matter who is recommending it, and if your reactions are severe, consider contacting the company yourself to confirm sourcing. The first trial should be only a very small amount and always with rescue meds and other safety precautions prepared, including someone around to help in case of reaction.

This is a product list with some hints at how I locate safe produce. For the specific list of what kinds of produce I can eat, see my “What I Can Eat” post.

Makeup

  • Priia CosmeticsNOT all their stuff is safe. Anything with Hyaluronic Acid or Sodium Hyaluronate will be corny, as hyaluronic acid is a fermentation product. However I am able to use their creme mineral foundation, was able to use their now-discontinued liquid foundation, and their concealers. If you purchase their foundation, make sure to get samples first and carefully read their post on foundation application – you need to wait 3-5 minutes after applying the foundation sample to see how it will react with your skin.
  • Bellaphoria– all of these products are corn safe, but their foundation colors do not match my skin tone- they seem to work best for those with cool undertones and lighter skin.
  • Alima Pure Cosmetics Loose Powder Mineral Makeup – Check ingredients. I only use their powdered (not pressed, loose powder) products, and not even all of those are free of corn derivatives. But the Satin Matte loose powder foundation and the loose powder highlighter, bronzer, concealer, and contour have worked well for me and not caused any acne issues.
  •  La Bella Donna Womens’ SPF 50 contains only titanium dioxide, bismuth oxychloride, zinc oxide, and iron oxides.
  • 100% Pure Fruit Pigmented Mascara– The mascara is the only product I know is corn safe. It is *not* gluten free but I don’t seem to react to gluten near my eyes, only ingested.
  • Concrete Minerals – eye pigments only. The mineral shimmers and the matte have slightly different ingredients lists, but the company has confirmed that the magnesium stearate in the matte colors is from palm. I am also able to use the eye primers, which have petroleum products and candelila wax but no corn-derived ingredients that I can see. The lip colors contain tocopherols which they told me are from soy, so you might be able to tolerate these if you are not allergic to soy.

Environmental Trigger Protection Products (Gloves and Masks)

  • Powder-Free Nitrile Gloves – Many brands may work but those are the exact ones I use. I wash my hands with safe soap after the gloves are on to get any  possible manufacturer residue off. I prepare food with these gloves on and have never reacted to the food because of it. Update 2014: The Costco brand powder free nitrile gloves work fine too, and are WAY cheaper.
  • I Can Breathe brand carbon filter mask. Update 1/27: I am now reacting to the new removable coconut-based filters for these masks. I now prefer the VogMask both for appearance and function.
  • VogMask n99 CV and Vogmask N99 C2V. I wear size Medium.  More info on sizing here. You can gently handwash these masks, but I personally don’t think sending them through the washing machine is a good idea.  Some people need to let these masks air out for a week or two before using. The filter portion of it is fine for me out of the box, however the cloth strip around the edge that holds the whole thing together makes my face itch, and sometimes the material of the outside of the mask “smells funny” to me. To deal with the itchy cloth, I get a faucet running and hold the edges under the stream and scrub at it with my fingers, then hang it on a doorknob to dry. Once it’s dry,  I stick the whole thing in my back jeans pocket and walk around like that for a day, the warmth of my butt removes any chemical smell from the mask. This works with everything except those velvety ones that just smell weird to this day. Yes, I did just recommend using your butt to *remove* scent from an item. Any other way you have to get it warm but not too hot for several hours should work fine, I just find my back pocket convenient. Here’s a longer explanation of why I use this particular one and what it does and doesn’t help me with.
  • 3M Half Facepiece Respirator with  the  3M 60926 Multi Gas Filter Cartridges. I got this for heavier chemical & allergen exposures than the vogmask n99 can help with, however I have not used it for this purpose to see how much more effective it is. I got this product from someone who is MUCH more chemically reactive than me and believe that it will help far more than the vogmask, I just so far choose to avoid anything that the vogmask can’t handle.  I needed to air out the respirator portion of this for weeks before being able to put it on my face, it smelled strongly of plastic to me. Now that it’s been wiped down and aired out, I can wear it and the filters without having reactions to the mask or cartridges.
  • For extremely sensitive latex allergies, the 3M 60923 Organic Vapor/Acid Gas cartridges have been vetted to be latex free by the community. They filter fewer things than the ones linked above, so i would use the 60926’s unless you’re in the extreme latex sensitivity camp.
  • I now use the 3m “rugged comfort” half facepiece respirator instead of the one listed above. It’s safe for me but has not been vetted as 110% latex free by the highly latex sensitive community. 3m’s website says the facepiece does not contain latex, but I am not sure about the elastic band. Do research if you are highly sensitive to latex.

Personal Care Products

I make most of my my own body products. Recently, when I say that I mean that I buy actual raw cosmetics ingredients from cosmetics suppliers. To get an idea of what this looks like, check out the blog and youtube channel from Humblebee and Me. That’s about what I’m doing, but in a more disorganized manner and with a lot more questions to the suppliers about the exact source of products.

Below are some raw ingredients that I still use. I am additionally using cosmetics supplies from MakingCosmetics, LotionCrafter, Formulators Sample Shop, and many other places. Sorry I’m not ready to blog about this in detail yet as I’m still determining what works and is safe. But my hair looks waaaaaay better than before lol.

  • Karlin’s Finest Baking Soda (for ingestion and personal care, bought at my local co-op)
  • Desert Essence Tea Tree Tooth Tape – waxed with bees wax. I don’t react.
  • Moon Valley Organics liquid hand soap-  NOT their bar soaps or other products. I make my own body wash (see notes here) but theirs has the same ingredients as the liquid hand soap so it might be safe.
  • beeswax pastilles from Mountain Rose Herbs
  • NOW brand jojoba oil
  • NOW brand castor oil
  • NOW shea butter
  • Mountain Rose Herbs shea butter
  • Mountain Rose Herbs cocoa butter (topical only though it is food grade)
  • Mountain Rose Herbs tamanu oil
  • Young Living and Rocky Mountain Oils essential oils (check to make sure they are steam distilled, not solvent extracted.) Other oils may be safe, those are just the ones I use. NOTE: These oils can be triggers for anyone with scent sensitivity including those with mast cell disorders. Try with caution and please be aware that others around you may react to the scents if you wear them!
  • zinc oxide powder- non-nano only. I ordered some random stuff that I didn’t do any research on other than to know it did not contain nano particles, so I’m not saying which brand because I don’t trust it necessarily.
  • titaniuim dioxide powder – I ordered some random stuff from Amazon and it seems fine, but not linking it because I did no research.
  • Amazing Herbs Black Cumin Seed Cold-Pressed Oil (topical only)

Cleaning Products

And of course, I also make a lot of my own cleaning products.

  • 20 Mule Team brand Borax (for cleaning only)
  • Charlie’s Soap Laundry Powder (contains coconut)
  • Charlie’s Household Cleaner (contains coconut)
  • Arm & Hammer brand washing soda (this is different from baking soda, and you *can* make your own)
  • any brand of isopropyl alcohol: Note, as of 2021 some isopropyl is now made from corn alcohol. Most drugstore brands of isopropyl are all made at one factory that is still using petroleum. I would trial new brands carefully and check with other corn allergy patients via support groups to see what’s being tolerated.
  • Bragg’s Apple Cider Vinegar (only for cleaning- I react to it ingested.)
  • Molly Suds Laundry Detergent – Powder only. The liquid products contain corn derivatives.
  • Mama Suds Castile soap– Note, some people who are fragrance sensitive find that the unscented batches have mild cross contamination with the scented batches. I have not noticed this but have heard from others who have.

Household supplies

  • Paper Towels: unpaper towels, and also the Kirkland brand of paper towels from Costco
  • Kleenex: handkerchiefs
  • Napkins: cloth napkins
  • Cotton balls: reusable cotton rounds
  • Toilet paper: Scott Tissue 100, regular (not extra soft)
  • Trash bags: Glad tall kitchen drawstring bags. (I don’t react to those but doubt they are safe for everyone). Also the Kirkland *heavy duty* kitchen trash bags. The “regular” ones changed to have a noticeable fragrance when they started producing a fragranced variety- presumably cross contamination in the facilities.
  • Q-tips: store brands have all been fine for me so far
  • Cookware: Glass, stainless, and enameled cast iron. I want things that will come completely clean if unsafe food comes into contact with them.
  • Bakeware: I don’t do much baking these days due to having no safe flours, but I have been using pyrex and anchor hocking glass baking dishes and silpat and fox run brand silicone baking mats.
  • Aluminum Foil: I am using the Reynolds brand heavy duty and regular foil successfully and daily. I have gotten a couple from Costco that were contaminated with some kind of fragrance but they eventually off-gassed and I was able to use them safely.
  • Utensils: Silicone.
  • Blender: BlendTec -There are a number of high powered blenders out there. This is the one I got,but if I had to do it over again I might go for the much cheaper Ninja. Suffice it to say that I really do think that with this allergy you are going to WANT a blender that is capable of more than your average Oster. Here is a brief overview of the options out there.
  • Pressure Cooker/All-in-one cooker: Instantpot. I have three sizes and I use them ALL regularly. Please note that the air fryer lid comes with a teflon-coated liner and that is not safe.  Just the regular stainless liners and pressure lids.  (The Ninja Foodi air friers seem to all be ceramic coated- I haven’t tried one but it sounds like it’d be safe.)
  • Pots and pans: So far any brand of stainless pot or pan has been safe for me, although I have not tried every brand. Stainless not intended for high heat has been hit or miss due to what I think must be coatings- some of them I am able to eventually use if I scour them and rinse them enough times, others remain unsafe forever.  I am also so far able to tolerate every brand of enameled cast iron and ceramic cookware.

A note on silicone: There are some questions about the safety of silicone bakeware. The conclusion so far is that it seems relatively safe but there just haven’t been many studies done.  With respect to a corn allergy, one thing you’d want to worry about would be whether the cheaper silicone items could have corny fillers and dyes. Additionally it is important to note that silpats (which I use and happily)  are actually fiberglass coated in silicone, so you might want to avoid using a pizza cutter or sharp knife on your silpat.

Food Storage

I try to go with glass over plastic and when I store in glass I try not to let the food touch the lids.

  • Anchor Hocking TrueSeal Glass Storage
  • Pyrex Bake & Storage Glassware
  • Mason Jars- for fridge, shelf, and even freezer. I also eat soup out of mason jars.. I’ve found that many beer coozies will stretch to fit over a mason jar, so I freeze my soup in the jars, then microwave them still in the jars and slip a coozy over to insulate while I eat it.
  • Mason jar lids:  the bpa-free Ball brand canning lids contain a corn-contaminated resin and are NOT safe. I personally have been able to store non-canned foods using these lids so long as I don’t boil the jar and melt the resin, but this is a dangerous game. Some options for storage lids are:
    • Eco Jarz stainless storage lids (I haven’t tried this brand, so please do your own research)
    • Ball plastic storage caps (NOT water tight!)
    • Turning the regular canning lids upside down so that the resin doesn’t touch the food. (This only helps if you don’t react to touching the resin, which some do.)
  • FoodSaver brand vacuum bags – other brands may safe but have not been vetted by anyone. Anything made from plastic can be dusted with corn starch or made with corn-derived plastic.
  • Ziplock Brand Bags – UPDATE: Recently Ziploc released a new “easy open tab” on all of their bags, and when they did this, the plastic of the bag itself changed texture. A couple of the *most* sensitive people have reported reactions while many are still using them safely.
  • Ziplock brand “slider” bags.  Storage and freezer, all sizes. These are working for me still but reactions have been reported.
  • Hefty brand “slider” bags. All sizes. Note that these have been identified by the latex allergy community as being cross contaminated with latex.
  • Cling film: Berry Plastics “Omnifilm” 12″ roll, 5000 ft. Item # J820340.  Box E0452, UPC 709411 27245 6 – I do not buy this for home although I’m going to try soon, but the shop I buy cheese from uses it and it’s the first I’ve found that I’ve not reacted to.
  • Aluminum foil: I have only ever tried good old Reynolds brand, and it works for me and many others. There are totally possibilities for aluminum foil to be corny, so try cautiously.

Packaged Foods

I can’t believe I’m even writing this section. I never thought it was possible. I’ve been doing some protocols for settling my mast cells down that I’ll write about someday, but not today.  I don’t know for a fact that any of the below would not have worked for me before, but i was not brave enough to try them before.

  • Hu chocolate gems and bars – simple/unflavored only.
  • Once Again crunchy almond butter and unsweetened sunflower butter. The creamy almond butter was a very slight buildup reaction, and the cashew butter was not safe at all.
  • Bali Raw Cashews from Natural Zing – only in the clear 2.5lb  plastic bags. I think the bags for the smaller sizes are paper lined with something corny since I reacted to them.
  • Whole Cacao Beans from Natural Zing – the nibs and powder were moderate reactions for me. I have not tolerated any nibs or powder from anyone, not even Wilderness Family.
  • Peruvian Dried Olives from Natural Zing – I think the herbed ones are okay too but i haven’t eaten them much.
  • Purple Botija Raw Olives from Natural Zing – these are lactofermented in a salt brine solution. I still react to many kinds of water and most salts, but somehow those things together are fine in this product.
  • Vital Proteins Beef Gelatin – I buy the plastic tubs, I’ve never tried the packets.
  • Aroy-D Canned Coconut Milk – cans only, not the aseptic cartons. All sizes seem to be safe for me.

Cooking Fats

Flours/Grains

  • Otto’s Cassava Flour – Confirm with the company which size of flour is being hand-packed as the factory-packed ones share a facility with corn products. Usually the 15lb is the right one, though.
  • Lundberg sushi rice – 2lb bags- This took a LOT of washing to finally be safe for me. In general short grain rice takes more washing than other kinds to remove the excess starch and create the best results in cooking. But for my allergy tolerance, I also needed to really wash it for like more than twice as long as I would longer-grain rices.
    There are probably a lot of ways to wash rice but all the  ways I see from Asian people including the Thai side of my family involves putting the rice in a bowl and filling with water and then swishing around while scrubbing at the grains a bit, then draining the water and repeating until the water is clear or nearly clear. I do this with a nesting mesh colander that I lift out, but you can also just kind of tip the bowl and use your hand to strain.  The first time I tried the rice, I was rinsing and scrubbing for so long I gave up once the water poured into the bowl was clear without agitation. It turns out what I needed was for the water to be nearly clear even after I scrubbed and agitated. I’m told by a Japanese friend that you want to stop short of the water being completely clear if you would like the final product to be a bit sticky such as for making onigiri or sushi. However obviously if you need to wash it more for tolerance, there’s no choice about that.

Spices/Herbs/Condiments

For the most part I try to use herbs that are fresh from specific vendors at the farmers market or my own garden. I dry and store them for the winter. I can’t reliably tolerate dried spices from any particular vendor so far.

  • Himalayan pink salt, bought in large blocks intended for salt-plate cooking. I rinse them under water for 3-5 minutes then let them dry, then use a very HUGE mortar and pestle intended for making guacamole to whack off chunks and break them up into grinder-sized pieces. I have eventually reacted to every pre-ground salt, so this is how I have to do it.
  • Red Boat Fish Sauce – just the unflavored fish sauce, not any condiments but so far any variety iof unflavored, including the unfiltered has been safe.
  • Coconut Secret Coconut Vinegar – NOTE, Nutiva just bought this company and I have NEVER tolerated a product from Nutiva so I may remove this product soon. 😦
  • Coconut Secret Coconut Aminos – Same story as above. Works for now, have no idea if the next batch will work. I also tolerated the coconut crystals and coconut flour, and those have been completely discontinued.

Vegetables/Fruits

At this time I am am *mostly* eating fruits and vegetables from specific local vendors at the farmers market. These are vendors that I have talked with and determined that they use practices that work for me allergywise. (For ideas on what questions to ask, reference Where’s the Corn in Foods? and this awesome list of questions.) I do have just a couple of grocery store items I can eat, and then there are a couple of items I mail order away for because it is easier than finding them safe locally. There are also just a few items that I have discovered I can eat only if I grow them myself, mostly root vegetables, because the  organic fertilizers that folks are using are problematic for me. Not sure if that is for corn reasons or what.

General advice about asking questions of farms: Check about the spray status of *each* crop, as different plants will have different possible issues. For example,  in my area squash,pole beans, and eggplants have powdery mildew issues and may be sprayed with a certified organic spray for that. Brassicas (like broccoli) may have pest issues during the hot months that will decimate a crop in a day, but do not have these issues in winter, so cabbage from the same farm may be unsafe in summer but safe in winter, or may be intermittently unsafe in winter since they are selling a mix of new plantings and heads that were planted in summer. On the other hand, some crops like peppers that are resistant to these issues may not be.  To complicate things more, the microclimate may vary between farms even if they are relatively close together, so they may face different issues and use different methods. Ask about sprays a few different ways- Often people are accustomed to answering questions from the perspective of toxicity or general safety, and will reply that they don’t “do anything” to a crop, when they mean they don’t do anything *toxic* to it.  Something that works for me is to just ask them about whether a specific plant is pretty hardy or if it’s susceptible to blight or pests, and how they deal with that.

Mail Order Fruits & Veggies

  • Chaffin Family Orchards – Citrus fruit and raw/uncured olives to cure yourself. The pre-pressed olive oil is NOT safe.
  • Rancho Charanda Citrus Ranch –  So far everything I’ve tried from them (citrus, dragon fruit, cactus fruit) has been safe for me.

From Local Farms

Note that these foods are subject to seasonal availability, so it is very important that I buy extra and preserve while they are available. All items must be spray free. Fertilizer seems to only matter for items that grow below the ground our touch the ground. Items that are co-grown with corn are a problem for me, and during corn harvest season anything that is even transported on a truck with corn I react to. As much as possible, I avoid farms that also grow corn.

  • Leafy greens, tomatoes, peppers, pole beans, peas: Spray free. Fertilizer does not seem to be not a very big problem with items that grow above the ground.
  • Pomme Fruits (apples, pears, quince)- Mineral/kaolin clay is okay for me if I peel them, but not others. My first-safest vendor uses poultry to control bugs on his apples. My second safest vendor is not organic but sprays once before the fruit buds and not again later. The certified organic folks often spray their organic pest repellents several times throughout the season, coating the fruit in the corn-based solvent/coating agents used to make the repellent stick. If the fruit itself has been sprayed with anything, organic or not, there is usually an issue.
  • Stone Fruits (peaches, apricots, plums, cherries) – Similar to above, but these fruits are very prone to mold in our area, especially cherries. >Late in the season, bags may be used to line the fruit boxes that are either dusted with corn starch or have an antimicrobial coating.
  • Berries – Spray free. U-pick if possible because the packaging can be corny. More info here. 
  • Mushrooms, grown on sawdust. More on how mushrooms can be corny.

Grown Myself (Curently this should probably be read as, “stuff I *could* eat if I didn’t suck at gardening.)

  • All root vegetables.

I seem to have an unusual amount of troubles with foods that grow below the ground. I believe this is because the certified organic fertilizers many farmers use contain corn based preservatives like citric acid, and those that simply use animal manure still feed their animals some corn. I am still working out what the parameters are for safety for myself. So far using NO fertilizer results in root vegetables I can eat, but very low crop yields. Like, my last attempt I got about as many potatoes as I planted.  (boo) But they were safe. (yay)

From the Co-op or Natural/Organic Grocery Store (all items organic, unwaxed, and not packaged in any kind of plastic bags or wrap, however I may be getting lucky with if and what kinds of sprays or fungicides are being used. Your mileage may vary depending on your sensitivities and the suppliers for your particular store)

  • grapefruit (organic, unwaxed, ungassed, from California)
  • tangerines and mandarins (organic, unwaxed, ungassed, from California) – somehow not navel oranges, but I don’t know if this is a corn problem or not
  • Equal Exchange brand bananas. Organics Unlimited brand bananas.
  • Somehow, don’t ask me how, but every organic mango I have ever tried from my local food co-ops has been safe for me?
  • Covilli brand organic Oaxacan Gold pineapple, Pink brand organic pineapple (from Jade Produce), La Patrona brand organic pineapple (from Pao Organics)

Meat/Protein sources

  • Chicken (custom processed, not corn fed)
  • Beef (custom processed, not corn fed)
  • Lamb  (custom processed, not corn fed)
  • Shellfish (local, pulled direct from the water and only kept on ice)
  • In-Shell Walnuts from a private distributor.   Sorry, I am working on a new publicly available mail-order source but currently do not have one. I have reacted to in-shell walnuts from many orchards that claim don’t spray, and have reacted to all shelled nuts, ever.  I keep the walnuts in the freezer until I eat them so they don’t mold. Yes, it takes up a lot of freezer space. Yes, cracking them is labor intensive. I do it anyway.

Sweeteners

  • A few local honeys. (questions to ask)
  • Honey from Sunny Honey Co – ONLY the 12 oz sizes and larger as the smaller jars are sanitized with unsafe cleaners. I reacted to the raspberry blossom and sweet clover. I have tried and done well with: moses lake wildflower, fireweed, buckwheat blossom, maple blossom, blackberry blossom, coriander blossom. I reacted to pumpkin blossom but believe it is corn safe as others have tolerated. I am allergic to pumpkins.
  • Maple syrup from Patterson Farms. The defoamer is heavy cream.
  • Maple Syrup from Sugar Maple Farms. They use no defoamer at all.  I have only tried the plastic jugs not the glass jars, and do okay with them.

Beverages

  • Tea- I am tolerating the teas from Mountain Rose Herbs in the 4oz cellulose packaging. The larger packages are in craft paper bags lined with corn PLA and I react to those. I personally can only do the black and oolong teas (except the Kumaon variety, but don’t know why) but I think this is a separate sensitivity and has to do with how black vs green tea is processed. I have not been able to do any herbal teas from MRH and I don’t know if that’s corn or another sensitivity.
  • Coffee – I mainly buy from Dancing Goats Coffee. They’ve been very responsive to production and packaging concerns and have clear information on how each  of their single origin coffees is processed. I seem to do slightly better with coffees that are not wet-processed or washed, but honestly all the roasts I’ve gotten from them have been safe, including the blends. I do find that I do better if I rinse the coffee beans in water and then dehydrate them- when I do not I eventually start having interstitial cystitis symptoms which I’ve recently realized cease when I take antihistamines. So it’s a build-up reaction.  Their foil bags are lined with poly plastic. Their “biotre” paper bags are actually made from wood pulp, but I still try to stick with the foil bags because packaging changes are scary.
  • Z Street Coffee has also been safe for me. Their black poly-lined bags have been safe for me for packaging. I haven’t spoken to them in some time, but the owner has a relative with corn allergy and is aware of our concerns to some degree and happy to answer questions.

Dairy Products

Deli Counter Cheeses

NOTE: Packaging is a HUGE problem with cheese, especially cut and wrapped cheeses. Many/most plastic wraps are either dusted with corn starch or in some other way are corny and cause a massive reaction. Additionally the surface cleaners and disinfectants that many shops will use will contaminate cheese. I happen to have completely lucked out and found a local shop (Metropolitan Market in West Seattle) that uses products that are okay for me. The same chain but a different shop (Bellevue) is NOT safe for me. So finding the cheese itself is only half the problem. Less than half. For items like the Herve Mons Emmental, the wheel is something like 150-200lbs, so ordering the whole wheel is probably not reasonable unless you have a HUGE group buy.

Generally speaking when I’m choosing a cheese to try I try to look for something that is very traditionally made. Name-controlled cheese like the French AOP or Italian DOP/PDO designations seem to have a good rate of being safe. I also look for cheeses that do not contain extra ingredients like “enzymes”, various spices/flavors, or egg egg lysozyme,  although once in a while these have been okay for me. I do  avoid the specific ingredient anatto as that is derived from corn more often than not. I have not yet tolerated a microbial or vegetarian rennet as these are typically fermented on corn dextrose, so I tend to only bother to try cheeses that use traditional animal rennet.

Do note that many of these traditional cheese are very pungent and “moldy” and are not to everyone’s taste. Fortunately I was a stinky cheese fan “before” corn allergy. They are also incredibly expensive.

  • Kirkland Isigny St Mere brand grass-fed Brie. This cheese is grass fed in summer but the cows are supplemented with grain in winter, and the grain surely contains corn. I still do great with it. NOTE: I have pulled this due to an intolerance reaction- I do not think the cheese is corny but I think it may be soy or gluten contaminated.
  • Herve Mons St Nuage cheese – It’s very ripe and VERY rich. It does not have the “stinky” bite like the camembert below but it’s still a bit more ripened than the Isigny brie.
  • Monte Enebro goat cheese from Spain. – This, like the other cheeses other than the Isigny, is very expensive.
  • Herve Mons Camembert– This one smells a bit like feet, so if you are not a stinky cheese fan, stay away. 🙂
  • Herve Mons Emmental –  This is a hard cheese, similar to Gruyere or a very aged swiss in flavor. Note: You MUST find someone who can cut and wrap this for you safely as the whole wheel is over 100 lbs!!!
  • Vallee d’Aspe Ossau-Iraty raw sheeps milk cheese. This is a semi-hard aged cheese, think gouda more than extra sharp cheddar, with a very rich creamy, somewhat nutty flavor. I do not buy it from the seller I just linked, I get it locally.
  • Grana Padano cheese, any age, from Ambrosi or Agriform. This is one that contains egg lysozyme so avoid if you have an egg allergy.
  • Delice de Bourgnone triple-cream soft cheese – If you don’t have a safe option for cut-and-wrap,  the whole wheel of this is a lot (4.4lb) but more reasonable to buy than, say, a wheel fo Herve Mons emmental.
  • Époisses cheese.  This is sold in a whole wheel in a manageable 8oz size, but it’s also banned from French public transit because it smells so bad. If you like a stinky cheese, this is the one for you.
  • Fromi Colommiers Cheese –  I don’t remember the actual size of this, but the whole wheel is probably 2lbs or less. It’s not as smelly as Epoisses but it’s very ripe.
  • Delice De Mon Sire triple creme cheese. This one is a pretty mild brie, to me anyway. Not super moldy or stinky. I think a whole wheel of this is 2.2lbs.
  • The plastic wrap they use that is safe for me is: Berry Plastics “Omnifilm” 12″ roll, 5000 ft. Item # J820340.  Box E0452, UPC 709411 27245 6

Packaged Cheese and Dairy

  • Bellwether Farms Whole Milk Basket Ricotta – The sheep ricotta has corn ingredients, the linked item does not.
  • Bellwether Farms Creme Fraiche – note that the fromage blanc from this same company is not safe, and I suspect that the crescenza would not be either. I think it is most likely the starter cultures used as those frequently seem to contain corn ingredients when I look at the starter cultures available for individuals/hobby cheesemakers to buy.
  • Ferndale Farmstead cheese– So far, everything I have tried from them is safe for me: Fresh Mozzarella, scamorza (including smoked), asiago, and caciotta. I do not know if you can buy this brand outside of the Pacific Northwest

Milk and cultures for home cheesemaking

I’ll list the actual milks I’m buying below, but if you don’t live near me that won’t likely be helpful. Here’s what i learned about finding milks I tolerate:

  • Plastic containers were an issue for me until I started doing some MCAS protocols to reduce my non-corn sensitivity. I am very certain this was not a corn issue. But if you also cannot tolerate plastics, what I had to do for some time was get people to put their milk in my steam-sanitized mason jars.
  • Sanitizers on the containers, lines, and  any pails and tanks are a BIG big problem. For some people the only possibly safe sanitization is steam/hot water. It’s been okay for me for them to use pure bleach (just sodium hypochlorite and no other weird additives) and then let it completely dry, then rinse and completely dry again.  What is NOT ever, ever okay is any kind of no-rinse sanitizer. They *all* contain corn. Star-san tablets contain actual corn starch. The stuff made wit peroxyacetic acid sounds like it’s oxygen based, but the acetic acid part is corn based. And then it’s not rinsed off so that causes even more of an issue.
  • And then of course feed is an issue, to varying degrees. For me it seems okay as long as the animals don’t get fed corn as their main diet, and a small treat during milking time or some vitamin supplements with corn derived vitamin c, do not cause an issue. That may be a problem for others.

Milks Tolerated

Cheese, Sour Cream, and Yogurt Making Supplies

I buy all of these from New England Cheesemaking as I have found their website to disclose all necessary ingredients information without me needing to call them about things. But you can certainly buy many of these from elsewhere. I made cheese a lot for like, 6 months and then kind of stopped because, well, it’s a lot of trouble.

Grilling Supplies

More info on grilling safety. 

Supplements

I dump almost all of these into liquid and drink rather than swallowing the capsules. This is mostly because I have poor esophageal motility, but it also means I don’t always have a good idea how safe the capsule is, just the filler.

  • Jarrow Pantothenic acid.   Cellulose is derived from pine; mg. stearate is palm; gelatin is beef-derived.
  • Jarrow Mag-Mind.  Cellulose is derived from pine; mg. stearate is palm; gelatin is beef-derived.
  • Jarrow B-Right.  Cellulose is derived from pine; mg. stearate is palm. Hydroxypropylmethylcellulose is from pine. Good news for those with MTHFR: Jarrow has updated their formula to ONLY contain quatrefolic rather than a mixture of quatrefolic and folic acid.
  • Integrative Therapeutics N-Acetyl Cysteine – Note that many products from this brand have obvious corn derivatives. This is the only one I use currently.
  • Jarrow Acetyl L Carnitine
  • Dr Ron’s Quercetin and Bromelain – This is the ONLY quercetin supplement I can find that is not derived from a plant in the legume family. The quercetin is from red onion, the bromelain is from pineapple, and the bioperine is from black pepper. It is extracted with petroleum ether.
  • Dr Ron’s Vitamin D3
  • As of May 2018, I have removed all Pure Encapsulations supplements from this list. Nestle bought this company and then a few months later the label changed and I began reacting pretty severely to all of their supplements. I believe they must have switched filler suppliers, although I can’t confirm this.  I do not know how many other people are reacting to this, but my reaction was strong enough I just can’t recommend it to anyone.

Medications

  • Compounded diphenhydramine (Benadryl)
  • Compounded hydroxyzine Hcl (atarax)
  • Compounded cromolyn sodium (gastrocrom)
  • Compounded levocetirizine (Xyzal)
  • Compounded ketotifen fumarate.  This med is one that takes 11-16 weeks to show effectiveness and has some difficult effects during ramp up (fatigue/sedation). It can only be compounded in the united states as there is no major brand name manufacturer distributing it here.   Reference 1 – Reference 2 –  Reference 3
  • Compounded ranitidine (Zantac) – as needed

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ER Safety: Emergency Medical Treatment With a Corn Allergy

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Updated 2/21/2017

Emergency Medical Instructions – For Mobile

Emergency Medical Instructions – Letter size (designed for front and back)

Corn products are in many  medical supplies. In particular, dextrose and glycerin (both usually from corn) seem to be in a number of injected drugs, and those two have in the past caused me severe–even anaphylactic– reactions when they come in contact with a mucus membrane. The last time I allowed a glycerin-based gel to touch my lip, everywhere it touched swelled immediately, and my tongue swelled on that side of my face, all the way into my throat. It was terrifying.

Injections aren’t the only danger, either. Disinfectants, lubricants, preservatives, and disposable  paper products also contain enough corn to give me at least a small problem, if not a dangerous reaction. Even the sugar used to treat dehydration and restore electrolyte balance is corn-based.

Even those without such severe and immediate reactions can and have experienced significant discomfort as a result of corn in medical products. GI reactions, migraines, or rashes may not block off your airway, but they are definitely unpleasant and can still be dangerous.

The idea that someone could kill me while trying to save me keeps me up at night, so I’ve been asking a lot of questions trying to figure out how a medical responder can avoid killing me when trying to save me. I don’t have all of the answers, but I have a plan, and I hope it works.

  1. Wear some kind of medical alert bracelet. I have a MedicAlert brand bracelet, the largest size available, to fit as much as possible, which still isn’t enough. The text reads: TREAT WITH IV SALINE. ANAPHYLAXIS TO LACTATED RINGERS, GLUCOSE,DEXTROSE, SUCROSE, PCN.  (PCN is short for penicillin.) I have a membership so that I can use MedicAlert’s online medical history service but there are definitely other services out there that do similar, and plenty of other jewelry-only type vendors.
  2. Keep a thorough but succinct treatment plan in several places on your person. The document below is my best attempt at this. It is formatted to fit on a letter-sized sheet of paper, front and back. I also want to make small laminated cards to keep in my wallet and a version on an In Case of Emergency app on my mobile phone.
  3. Keep a more detailed medical history on your person and/or an online repository. There are also USB medical bracelets that you can buy and wear.
  4. Consider putting together a hospital bag ahead of time for inpatient stays that contain necessities.

I don’t know how well this will work, but I really hope it will at least keep me alive in a medical emergency.

And, of course, I am sharing what I have so far. The following is a publicly available Google Doc that you can copy to your own google doc and alter as you like. My doc includes notes on what you should change to customize for yourself. And of course it only covers a corn allergy, so if you have other allergies, such as penicillin, that need to be mentioned, it is only a starting point. Here it is:

Corn Allergy Emergency Medical Instructions – Letter size (designed for front and back)

Corn Allergy Emergency Medical Instructions – formatted for mobile

I’ll update here as I get more formats set up for wallet cards and mobile apps.  Different ICE apps have different features, but they all usually provide a widget so that the info can be accessed from the lock screen without unlocking the phone. This is important to me since I have all of my email and social networking accounts hooked up to my phone. While I’m not particularly concerned that an EMT would stop trying to safe me to try to hack into my stuff, I think that my phone could end up in ANYONE’s hands if I were incapacitated.

Note that the document is only meant to cover emergency room procedures- not routine medical care, nor longer term or inpatient procedures. I now have a post about longer hospital visits that is very much work-in-progress.

Dealing with Skeptics

Something that comes up often in any medical situation is skepticism that corn can be the root cause of all the reactions to various chemical derivatives. Rather than argue this in an emergency situation, the following tactics have worked in the past:

  • Claim chemical sensitivity: Say that you react to “preservatives,” “dyes,” and “additives.” People are for some reason more likely to believe that one can have a non-specific sensitivity to these things than that one can be reacting to the corn source of them.
  • Claim multiple sensitivities: For some reason people are more willing to believe that you are separately allergic to citric acid, potassium benzoate, polyethylene glycol, glycerine, and a dozen other ingredients than that you are only allergic to them when they are derived from corn.
  • Use the term “sensitivitiy” or “adverse reaction” rather than “allergy” unless you have a positive IgE test result to show. “Allergy” means something specific in the medical world, so if your adverse reactions are not proven to have IgE as a mediator, it’s only going to hurt your case to insist that you have an allergy. Adverse reactions can still be severe, so make sure that you stress that you have had severe adverse reactions to corn derivatives, preservatives, and excipients in medications.
  • Remain calm and be as logical as possible. If you seem emotional, you will not be taken seriously. I realize that the fear and the coursing adrenaline in emergent situations make this difficult. Try to breathe. If they are insisting that there is no choice other than a product or medication you fear you will react to, ask if they can try a small amount or do a skin test to make sure it’s safe. Also ask what their protocol is for severe reactions or anaphylaxis. This is both so that you understand what will be done if you react, and to remind them that anaphylaxis is a possibility.

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